Monday, January 16, 2012

I Have a Dream... "Project Migraine Hope"

Happy Martin Luther King Jr. Day! Today I want to honor Dr. King by sharing with you all about my own dream. I am nervous to step with faith as the only person I've shared this with is George. But I feel so passionate about it and so excited that the I can only thing I can do is dive in. Are you ready? Let's go!

I have been brainstorming ideas with you all on how to get more signers for the Alliance for Headache Disorders Advocacy petition to urge Congressional hearings on the impact of Migraine and Headache disorders in my last two posts part one and part two. While brainstorming, I saw that other communities have done video projects to create awareness around a certain topic whether it be health topics, LBGT issues, bullying and the list goes on. You can see a 2010 article by Sarah Kessler: 5 YouTube Projects that are Making a Difference. I found watching these video projects very inspirational and motivational.

I have decided to start video project for Migraine disease that creates awareness by giving a face and a voice to Migraine disease and has a message of hope.

I am calling it "Project Migraine Hope" 

Migraine is something that many people think of and dismiss as just a headache. But we know it is more than that. In many cases, such as mine, Migraines are chronic, debilitating and disabling. It creates a great burden on the individual and those around them.

So far, the numbers have been rising slower than we'd like on the AHDA petition. As I stated earlier, I would like Project Migraine Hope to be an avenue to give a face and a voice to those individuals who would be affected positively by a congressional hearing (the goal of the current petition) and every other future Headache/Migraine advocacy initiative. It is my hope that the personal nature of this project will bring compassion and greater awareness to this disease and those who suffer from it.

I am looking for individuals who have Migraines (chronic or episodic) and for loved ones/caregivers of those who have Migraines of all ages and backgrounds to share their stories with Migraine disease: the good, the bad and the ugly via a video submission. Often times, we put on a mask, but let's tell the world how it really is!

If you know me, you know I am about Hope. Therefore, I want this to be about hope as well: sharing our hope for positive outcomes in the area of funding for research and also reaching out to fellow sufferers in sharing what hope we hold onto when times get tough.

So many of us have been in a place with our Migraines where we have felt depressed, devastated and lost: when nothing is helping and you are lying alone in a dark room with excruciating symptoms; after another medication trial failed; when insurance did not cover a treatment; when the doctor said "I don't know what else to do" and/or "It is all in your head"...

We need to share with each other how we hold onto hope and to talk about what keeps us going amidst the struggle during dark times.

There IS hope for the area of more funding for Migraine research. And there IS hope for each individual Migraineur.

Are you with me? Do you desire to create awareness about how this Migraine disease has affected you or your loved one's life?   Let's create a spirit of hope among the community with individuals sharing with each other: "There is hope."



Let's tell it like it really is. Let's dream with hope. Let's live with hope. Because there is hope.
Migraine hope.

What do you all think? Are you in? Do want to be a part of this? Let me know in the comment section your thoughts about this project.

As there might be some confusion because my personal blog has a tag-line that indicates I am a Christian. I want to make sure that everyone knows that  Project Migraine Hope is non-denominational and persons of all groups, faiths and affiliations are encouraged to participate! Everyone's story is important!

In the next few days, I will be posting on guidelines of how to be a part of Project Migraine Hope, guide you through making/submitting your own video for contribution to Project Migraine Hope  and will let you know when I will start accepting submissions!. I also intend on moving Project Migraine Hope to a new website. Stay tuned for that information.

OH! And by the way, if you have not yet looked at or signed the AHDA petition (which takes a minute), please do. Click here. And a reminder when you sign the petition: it is a legal document, so make sure you provide truthful information (i.e. no phony email addresses).

15 comments:

  1. Kelly, this is beautiful! And you are beautiful. I'm in. Keep me posted.

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    1. Thanks Caylyn. You are a dear. I'm so glad you're in.:D Big hugs your way. Thanks for being such a great encourager and supporter! <3

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  2. Kelly, this is wonderful! A beautiful idea from a beautiful lady with a beautiful spirit.

    hugs,
    Teri

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    1. Oh, thank you so much for your support, Teri! Your words mean a lot. Sending hugs back to you. :)

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  3. Kelly, not sure if my other comment went through, but I am game for this as well! As always let me know how I can help. This us an awesome idea and you're a great inspiration!

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    1. Thanks, Heather! I'm really excited and sure I will be needing help and feedback along the way. Hugs.

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  4. Sounds like a great idea and you can count me in...keep me posted please. Lesley

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    1. This is great, Lesley! Thanks! I will let you know.

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  5. This is awesome!!! I've got this post queued up to share on my FB pages, including my personal profile as I know a lot of ppl who have chronic migraines, and I'll link to it in this weeks blog. I can't wait to see the videos that come in!!

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    1. This excellent, Michelle! Thank you SO much! I'm excited to get things rolling. I am going to announce a launch date when I can. :)

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  6. You are wonderful! What a great idea.
    I'll try to help. (I'm not much on videos. Can't watch most because I can't hear them, and I don't like what I look like right now...but I'll try...for a very good cause, and for you.)

    what a special person you are.
    wendy

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    1. I put captions on the above video just for you, Wendy, when I created it. I figured you might watch it. Did you happen to? Thanks for the encouragement. I am also taking blog and written submissions. The addy is www.projectmigrainehope.com

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