Saturday, January 7, 2012

AHDA Petition Signing Brainstorm

So many Migraine advocates are banging our heads (OUCH!) about how to keep the numbers rising of people signing the Alliance for Headache Disorders Advocacy petition to urge congressional hearings on the impact of migraine and headache disorders. We currently have 3695 signers and need 20,000 by March 27th as that is when the petition will be brought to congressmen at the annual Headache on the Hill event.

I'm looking to brainstorm more ways of what I can do to raise awareness about and motivation to sign the petition in the Migraine community and outside the Migraine Community.

What I've done:
  • Posted all over Facebook the link to the petition, so many times that I'm sure my "friends" want to whack me with a virtual noodle Family members have re-shared it on their FB pages; not so much luck with non-Migraine "friends."
  • Shared on Twitter (my handle is @flywithhope)
  • Written blog posts about the petition
  • Shared blogs on FB of others who have more knowledge than I do about the petition an its development such as this one,  Living With Migraines - Thoughts on a Sunday, from Teri Robert, who is a part of the Board of Directors executive committee of the AHDA,
  • Emailed family and friends that are not on FB or Twitter.
  • In late November I brought the petition into my headache specialist's office and shared it with him. (He was completely unaware of it.)
What I plan to do:
  • On the AHDA website, they have a link to a flyer (check it out!) they have made about the petition. My husband has expressed willingness to share it with concerned co-workers who are well aware of my disease, bring him Migraine related articles when they see them, and frequently ask him about me.  George is an actuary (not in the health care field), so this could be applied to any workplace, given one has gotten permission from his/her boss first.
  • I plan on bringing the flyer to my headache specialist's office and to every doctor I go (that's a lot!) to and ask them if they would be willing to post it. (My headache specialist has fliers for other things such as the Rewrite Your Day Campaign, so it is worth it to ask.)
  • Continue talking about it on social media and my blog.
UPDATE- My husband passed out the flyer to a few people at work on Saturday (he's in his busy season) and they reacted very positively to it. I'm really excited that this could be a new avenue for people to take action as our caregivers/spouses/loved ones and those who are friends with them know this could impact them in a positive way.
What are your ideas about how to keep getting the word out to those who may not have heard it yet, have not signed it yet, or do understood why we need this petition signed? Have you signed it yourself? If not, that is a great place to start. It takes two minutes. Click HERE to read the petition.

I look forward to hearing from you:  if you have signed it, what you've done to promote awareness for the petition, what you're struggling with and your ideas for what you are going to do to keep getting the word out.

 Please see AHDA Petition Signing Brainstorm Part 2 for a follow-up of what people are doing!

6 comments:

  1. Hi Kelly, I'm putting a link to the petition in my January newsletter which comes out next week and focuses on headaches. I'm also blogging about headaches all month long so I'll add links to each blog post. Do you mind if I post a link to your blog in each as well? Both my newsletter and blog will post to my personal FB page, both biz FB pages, my twitter and linkedIn where I'm connected to lots of other massage therapists, body workers, chronic pain docs, etc. Hopefully that will get a few more signatures!!

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  2. Kelly - Thank you for this important reminder. I need to step up my efforts again to help get more signatures. I really like the flyer too and will be using that in this go around.

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  3. healingyew- That is a fabulous idea to put it in your January newsletter. Thanks for doing so! You are welcome to post a link to my blog. And it sounds like a great way to get the word out!

    MP- Yeah, isn't the flyer great!? I love that there is that scanner thing that you can use on smartphones. I don't own a smart phone, so I have no clue how to use it, but many people do.

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  4. Btw, My husband passed out the flyer to a few people at work yesterday and they reacted very positively to it. I'm really excited that this could be a new avenue for people to take action as our caregivers/spouses/loved ones and those who are friends with them know this could impact them in a positive way.

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  5. Kelly this is a great idea. I'm seeing my migraine doctor today, and I'm going tto take a copy of the letter to see if they'll put it up in the waiting room. He sees a lot of chronic migraine sufferers, so I think it could have a really positive response.

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  6. Melissa, That sounds great! Let us know if they are willing to put it up in the waiting room.

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