I have so many things I want to write about, but I am blocked and not because I have "writer's block". I am blocked because I feel I need to be writing more positive posts. But I cannot.
An estimated 10% of the 32 million Americans that have Migraine disease suffer from Chronic Migraine. Chronic Migraine basically boils down to that sufferers have fifteen or more Migraine days a month. I found this information in articles by Teri Robert: Chronic Migraine - The Basics and Rewrite Your Day for a Chance to Relive a Day Lost to Chronic Migraine.
I have seen a stat somewhere of the percent that I fit into. The tiny percent of those of us with intractable Migraine that is also refractory. The percent of us that no matter how many trials, how many medications, how many medication combinations, we do not respond to treatment. We have constant pain and daily Migraines. We rarely mention them until they are so severe we are at our breaking point.
In one of the support groups I am a part of, several of us are disabled by our Migraines. And by disabled, I mean absolutely laughable that you might suggest we could try to work. Disabled in that we would love to do things "average" people do like household chores, errands and sometimes drive a car.
We are a group where we have tried so many medications that we have run through the list. Some cannot take triptans, a group of medications that are designed to specifically abort the Migraine process. Those of us who can do not respond to them, or get marginal help. There are a variety of rescue medications used, and for the lucky ones, these medications mask the pain for a few hours. But, they don't take away the other symptoms of migraine. The ones that we can't really put into words. To George I call them my "neurological" symptoms...what makes Migraine different from my constant 24/7 headache.
We are a group individually grasping at straws, going from specialist to specialist as they throw up their hands saying "we don't know what to do." We are a group that cling tightly to each other and to our faith in God. We are a group that knows that there is not any more suggesting "Have you tried this?" The only thing we can do for each other is to support, encourage, pray, and love and the biggest one: understanding.
We are a group that often feels defeated. We want to have hope. We want to believe. We are strong and we are fighters, but when you are fighting a war and you lose most the battles coming home injured, you feel defeated.
But I look at this group of women and I think. Wow, they are the ones who are so strong.