Thursday, September 10, 2009

Summer Hiatus?

So, did I mention I was going to take a summer hiatus from blogging? No? Well, I'm back!

This summer has been a time of improvement and set-backs health-wise (Migraines/Asthma/stomach issues). But, overall, I am very encouraged. If my Migraine brain memory will allow me to, I'll attempt to summarize.

In June and July I had marked improvement and very low pain levels. My NDPH (New Daily Persistent Headache) was much more manageable with lower pain levels. My Migraine improvement was phenomenal. For about ten weeks from May to July, I had only three Migraines outside of my typical menstrual Migraines (which typically last 7-9 days)! Happy dances all around! I was able to start volunteering again. It was fantastic to start doing more normal things like cleaning and going to the grocery store and cooking meals for my husband. We were able to take a trip to Outer Banks, North Carolina. And we even decided to get another dog--an 18 month old rescue.

I felt as though I'd found my miracle combination of preventatives and exercising and biofeedback and diet and balancing activity with rest.

And then at the end of July, my head decided to go on a 37 day Migraine streak. Yep, you read that right 37 days! So, what went wrong?

According to my specialist it was a perfect storm of stackable triggers. It took more than one to take me down, which is the good news. But, as Dr. N (my beloved Migraine/headache specialist) said, when I fall, I fall hard. It was a perfect storm and my Migraine became intractable/resistant to treatment. Lucky me.

I was hospitalized for two weeks downtown Chicago at Diamond's Inpatient Headache Unit. In the last 10 months, over three different stays, I've spent a month in the hospital. Deep breath in. Deep breath out.

My Migraine did not break until 7 days after I was discharged. So frustrating. What is wrong with my brain? Since the Migraine broke, I have had good days and bad days. I have a Migraine about every other day and my NDPH pain has been up and down. I'm still spending a lot of time in bed, but I'm also getting out to walk and swim, which Dr. N will be happy about. I see Dr. N at the end of the month and will be glad to converse more with him and see what else we can do.

When I was in the hospital, I remembered the low pain time I had when we were on our vacation in North Carolina. I remembered the freedom of flying in a hang glider 2000ft above the ground. I remembered watching the dolphins swim through the ocean as the sun came up. I remembered walking on the beach through the waves as the sun set on the other side of the island. I remembered that I will get through this bad cycle. I remembered there will be better days. I remembered not to lose hope.

There is always hope.

But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary; tehy will walk and not be faint. Isaiah 40:31


  1. welcome back....i am so happy for your pain-free time....what a blessing to get break...but as i have been through the very same time..when the pain does it hit hard....sorry for that down time....nice to have to the pain-free monents to look back on i should say all the time i am asking my head what is wrong with it...but i figure i will be waiting a long time for the answer.....:)

  2. Chrissy, Thanks for the welcome back. :) I can't wait to check out your blog. It sounds like we have a lot in common. How did you find my blog?

  3. Yeah you're back! :) As Chrissy said, I'm happy for your break from migraines but I'm sorry for the rough patch. I hope things will improve for you again. Glad you had fun at the Outer Banks. I live in NC and love it here; but I just vacationed in Seattle and was pretty much headache-free the entire week...makes you tempted to move, doesn't it? But I think being away from typical stress-causers is the main thing that worked, at least for me.

    Anyways, welcome back!

  4. not sure really...i found your blog a long time ago...had a feeling you would come back to it...i hope you like my blog...kind if new to this blogging thing....i put you in my blog list....ya...i am kind of a pro on migraine disease and some other things....check out my poem i wrote called "First Place" is in the blog histroy....tell me what you think....:)

  5. Hi Kelly -

    I am wishing you a perfect storm of brain-calming, for a long long time to come - if that makes sense - it was very hard to have all those triggers hit just after you had such a good period, but I hope another, much longer good period like that is just around the corner. I appreciate your spirit through all this.

  6. Header, I missed your comment! Thank you. I do love it in NC! I wish moving to a different climate would make a difference. Then all of us would be together in the same location and have a blast!

    Megs, Thank you. I hope for a good period too. Taking it one day at a time.