According to the their website, the Alliance for Headache Disorders Advocacy
is dedicated to advocacy efforts that can result in better treatment for all headache disorder patients.
The AHDA has started a new blog called HeadNotes. This blog will provide another way to find what is happening with headache advocacy. Their latest post is a must-read as it is an update on what progress has been made since the formation of the group in September 2007. I was excited to read about how the AHDA has been making a difference.
It is of vital importance for those of us who are headache sufferers to be involved in the advocacy for better treatment and research. As others have said before me, if we do not stand up for ourselves, how can we expect others to do so?
The AHDA website has a page dedicated to what we can be doing all the time for headache advocacy. Addiionally, there is an Action Center as well as an action e-list where for you and other headache sufferers can sign up to receive alerts on important advocacy information. I encourage you to please sign up for action alerts and get involved! The HeadNotes blog is a great place to get started.