Wednesday, January 21, 2009

Do Ever Have One of Those Days?

Do you ever have one of those days where you look around and you cannot believe this is your life?

I am having one of those days...

I am *so* thankful for many things in my life, my husband, my house, my sense of security, my loving family, my forum buddies, my dog...

But, I am *so* angry and *so* frustrated and *so* deeply saddened to my c
ore about how Migraine disease and New Daily Persistent Headache and neck pain and Fibromyalgia are affecting my life right now.

It is just one of those days.

5 comments:

  1. *hugs* I didn't realize you had Fibro too, on top of anything else.

    I know what you mean about "those" days. I was having one yesterday. Hope that you're feeling a little better - I'm sending lots of hugs your way.

    Be well,
    MJ

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  2. Hi Kelly,
    I am a 52 yr. old mom of three who started having headaches and burning on the back left side of my head in Dec. 2007. My neurologist did an MRI of my head which was normal and started me on Neurontin for occipital neuralgia, but at that time did not know what was causing it. In Oct. 2008 I started having temporary vision loss in my left eye which only occurs when I turn out the lights at bedtime and only lasts a few minutes. My neurologist decided it must be from migraines and put me on Topamax and told me to wean off the Neurontin. The Topamax made my migraines worse with visual disturbances and weird neurological symptoms such as tingling and numbness in my arms, hands and feet that made me think I was having a stroke. I had 4 visits to the ER in one month and the headaches were so horrific they would wake me up and cause my heart to race. The ER docs did head CT scans, head and neck CT and spinal tap all of which were normal except the neck CT showed arthritis. On my last visit to the ER my headache was so severe I said my goodbyes to my husband and kids (didn't think I was going to survive it). I was then referred to a pain specialist who said my migraines, occipital neuralgia and neck pain were being caused by arthritis of the facet joints of C2, C3 and C3, C4. After 6 weeks of physical therapy, I am better (havent had a migraine for 4 weeks) but still have neck pain especially with the cold weather and burning sensations in back of head, burning nasal passages and burning left eye. Pain specialist said he would not recommend getting facet injections at this time since PT helped me so much but may be needed in future. I can't imagine how I will be able to stand dealing with this for the rest of my life (guess I don't have a choice). Also, I went to psychiatrist and was started on Cymbalta because I was so depressed from the level of pain. It is supposed to help nerve pain, as well as, depression. I was wondering if you felt the facet joint injections were significantly helpful to you?

    I hope you are able to get some relief from your pain. I know it must be so hard for you especially since you are so young. Life shouldn't have to be so hard.

    Love,
    Pam in Richmond, VA

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  3. Hey there -- unless I'm having one of those moments, I don't remember visiting your site before... but I'm so glad I have found it! I just added you to my blogroll... how are you feeling lately? Looking forward to catching up on your entries...
    -Joanna

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  4. Pam, I am so sorry that I taken *so* long to respond to your comment. I am so sorry to hear of all of your trouble. I am glad to hear that the PT seemed like it helped.

    In response to your question, my second set of facet blocks helped. I had different placement than the first set. They helped my neck and my Migraines. However, these injections are only temporary and do not have lasting effects.

    My neck physiatrist also recommends doing less-invasive things first to try to relieve pain before moving on to things that are more invasive, which is why we did the physical therapy first.

    Thank you for your well wishes and your comment. I look forward to hearing more from you.

    Kelly

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  5. Joanna,

    Thanks for adding me to your blogroll. I hope to be posting more soon. It has been a rough two months but things are starting to improve.
    Thank you for asking!

    Kelly

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